Hi Kim
He did'nt say it was ok to use for 4 years he just told me to use the
locoid
cream for max of 2 weeks at a time and after that use the daktocort with
no
time frame.
So when it started working it was great, Because emotionally as most of
you
would know far out weighed anything else at the time. I am going to stop
for
a week and just see what happens and try alternatives which I have tried
before and they all failed. I do appreciate what you and others are saying
and do take note from it.
But me getting to see a specialist again is like getting blood out of a
stone.
The first time I asked to see one I got told (Why do you want to do that!!
There is'nt a cure you know) That was my GP for you, Hence was!!
I also mix the cream I use which is so slight with water, I know I
should'nt
but i'm not being as down as I was before.
Many Thank's
Wayne
"Kim" <kimmalo@[EMAIL PROTECTED]
> wrote in message
news:aiop7vku3oc6ms80ecmt5515o9fenh0iia@[EMAIL PROTECTED]
> Hi Wayne-
> I'm really not trying to get on your case, and obviously your doc is
> the professional rather than I, but this is an im****tant thing to
> clarify for others in the same position. If he really told you
> daktocort is just like a strong moisturizer and can be used
> continually for 4 years, then you really should talk with someone more
> competent. He's not the first doctor to incorrectly prescribe steroids
> as if there were no side effect risks associated with them.
>
> Daktocort is still a steroid, which means it still has side effects
> beyond a basic moisturizer. Yes, he's right in so far as the milder
> the steroid the lower the risk, but long term continual use is the
> other prime risk factor and that usually is a concern after weeks or
> months, not the years you've been using it. And one of those side
> effects is as I described, where you think using the steroid is
> helping, but it is actually part of the problem. FWIW, the first
> pharmacy site I looked at said not to use it for more than 7 days:
>
http://www.mypharmacy.co.uk/medicines/medicines/d/daktacort/daktacort_hc_cre
am.htm
> which is erring on the side of caution, but is an indication of why
> your 4 years all the time, taken in conjunction with having to use it
> continually, is setting off alarm bells.
>
> I DO understand the upset and why you want it clear. But it's not a
> strict either/or. That's why I keep emphasizing that what you're using
> may actually be contributing to the problem as much or more as it is
> helping, despite what you think you see. And there are alternatives,
> including the new topical immunosuppressants like protopic/tacrolimus
> that are prescribed specifically for places like the face where
> steroids are not considered a good idea.
>
> Best of luck
> Kim
>
> On Sat, 22 Mar 2003 11:32:17 +0000 (UTC), "Wayne Lidbetter"
> <wolboy@[EMAIL PROTECTED]
> wrote:
>
> >Hi thank's for your response,
> >But I dont always use the steroid cream. What I mean is the skin
specialist
> >I saw told me to use the locoid cream only when an outbreak occurs,
which
is
> >very rairly thank god. In the mean time I use daktacort cream which is
a
> >very mild cream and was told this would be safe to use all the time
acting
> >like a stronger moisturizer. I forgot the name of this one but I can
say
it
> >is pretty good.
> >I am lucky as my P is just in the usaul place i.e elbows knees and a
few
> >dotted around.
> >But on the face is where it is upsetting so I want things to work for
me
and
> >others.
> > Wayne
> >
> >"Wayne Lidbetter" <wolboy@[EMAIL PROTECTED]
> wrote in message
> >news:b5fi0i$ejt$1@[EMAIL PROTECTED]
> >> Hi Adam
> >> I have a very faint redness on both sides of my nose and occasionly
> >around
> >> the ear lobes, I have used locoid cream on my nose and this works
great,
> >> Problem is if i dont use it for say 3 days it comes back so i use it
every
> >> night only. I have been using this and using it this way for 4 years
now.
> >> Not sure whats this is doing for my skin maybe thinning it but if it
stops
> >> the redness then i dont care.
> >> At least other parts of your body can be covered. Any more info just
let
> >me
> >> no m8. Good luck
> >> Wayne
> >>
> >> "AuCrown" <aucrown@[EMAIL PROTECTED]
> wrote in message
> >> news:20030313102005.07966.00000001@[EMAIL PROTECTED]
> >> > Hi,
> >> > I've had P for 12yrs or so mainly on my elbows, ****n scalp etc,
using
> >coal
> >> tar
> >> > cream i have managed to clear it completely from my arms and legs
but
> >have
> >> had
> >> > little success with my scalp.
> >> > In the last year or so I have developed dry red patches either side
of
> >my
> >> nose
> >> > whilst not very "crusty" they are not exactley attractive, I have
tried
> >> coal
> >> > tar but if anything this seems to make it look worse, I have
noticed
> >that
> >> there
> >> > appears to be a cycling effect with a flare every 3 weeks or so.
> >> > Has any one got any suggestions?
> >> >
> >> > Adam
> >>
> >>
> >
>
|
