> Last update 12/15/2003
Welcome! This is Part 2 of a periodic post about how the Post-Polio
Internet resources are organized, and about how to access the
information that's available. For additions or corrections,
drop me a note at mailto:epwoll@[EMAIL PROTECTED]
There are web
versions of this at http://rlis.com/kelownadays/ernie.htm
and http://www.execpc.com/~epwoll/reslist.html
---------------------------------------------------------------------
Forums - Newsgroup, Mailing Lists, Online Chat Rooms:
There is a newsgroup named alt.sup****t.post-polio. You can access
this through your newsreader news:alt.sup****t.post-polio
-----
There are a number of active mailing lists.
The lists are complimentary and each has a different focus. I've
attempted to describe that focus with a short description here. You're
urged to read the more descriptive information below and actually try
out one or more of the lists to get a better idea of what each list is
like.
polio@[EMAIL PROTECTED]
- Caring sup****t in a friendly
environment.
post-polio@[EMAIL PROTECTED]
- "A laid-back low-key, no-beefs list"
post-polio-med@[EMAIL PROTECTED]
- Medical aspects of PPS.
polio-groups@[EMAIL PROTECTED]
- Sup****t group information exchange.
For additional lists see: http://www.skally.net/ppsc/ppsc-l.htm
and http://groups.yahoo.com/search?query=polio&sc=0&sg=0&ss=1
-----
The St. John's University list is a private moderated subscription
based forum. Subscription to this list is conditional on accepting and
working within a set of guidelines provided at the time of
subscription. The intent of the list is to "Serve two purposes: To
supply information, and to provide sup****t and friend****p in an informal
and friendly environment."
To subscribe send an e-mail to listserv@[EMAIL PROTECTED]
with
a blank subject line and sub Polio yourfirstname yourlastname in the
body of the message.
The SJU Polio Archives are composed of posts post to this forum from
1/1/98, to the present.
There are 2 ways to access the forum's archives:
1. Point your browser to the following URL address:
http://maelstrom.stjohns.edu/archives/polio.html
2. Send an email command to: LISTSERV@[EMAIL PROTECTED]
In the message area write: INDEX POLIO
-----
Tom McKeever has moved his long standing Post-Polio FIDONET Echo
to the Internet, although the FIDONET echo itself still remains
active.
"As a service to the FIDONET folks who have Internet access, we had
established a Moderated List-Server at "pps@[EMAIL PROTECTED]
". Effective 8
May, 1999, this list has moved to a NEW home - One with many more
features and flexibility at: "post-polio@[EMAIL PROTECTED]
". This List is
ALSO a "controlled" list, in that rules are established, and WILL be
enforced.
The List is meant to be an adjunct only to established list(s) and
not to supercede or replace any others. The List is low-key,
PPS-Centric, meant to be kept LIGHT and POSITIVE, and will be KEPT that
way!! <G> - Consider it a laid-back, light alternative. :-) Humor,
poetry, POSITIVE stories welcomed.. Negativities discouraged!! - No
slamming of other lists, folks, companies, service providers, physicians
or the like will be tolerated!! The only other request is that the
subjects dealt must have direct relevance to PPS and how it
has/does/will affect our lives!!'
'You can ALSO subscribe by sending a no-subject message to:
"post-polio-subscribe@[EMAIL PROTECTED]
" or by going to the Web Site
at
"http://www.yahoogroups.com/list/post-polio"
and registering on-line!!
Thanks! Tom
-----
POST-POLIO-MED: is an open forum for questions and answers to and
from post-polio syndrome researchers, physicians and other post-polio
syndrome medical professionals, polio Survivors, family, friends,
students and others who are interested in post-polio syndrome. This
includes, but is not limited to: questions, answers and information
about post-polio syndrome research, clinical issues, clinical trials
and current treatment practices; sup****t group, newsletter and other
PPS related announcements. To subscribe to Post-Polio-Med send an
e-mail to:
listserv@[EMAIL PROTECTED]
in the message body put:
subscribe post-polio-med YourFirstName YourLastName
Posts to the list are public, archived and searchable and can be
accessed from the following link:
http://maelstrom.stjohns.edu/archives/post-polio.html
For more info on Post-Polio-Med, go to the Post-Polio-Med Web Page:
http://www.skally.net/ppmed/
-----
A polio sup****t group mailing list has been created for you: its
listaddress is polio-groups@[EMAIL PROTECTED]
http://groups.yahoo.com/group/polio-groups/
The purpose of the new list is to provide a place on the Internet
where polio survivors can obtain polio sup****t group information, such
as newsletters, meeting schedules and special projects that may be in
the process of being worked on by several sup****t groups.
Subscriptions: Contact Chris Salter <linpolioweb@[EMAIL PROTECTED]
>
Posting: Sending a message to polio-groups@[EMAIL PROTECTED]
will
distribute it to all of its subscribers. Because the list is a
private list it will require the sender to be a list member.
List Archive: A private archive of messages sent to the mailing list
is available on the Web at http://groups.yahoo.com/group/polio-groups/
-----
There is an AOL Chat Room on Thursday evenings starting at 8:00 P.M.
EST and goes until 9:00 P.M. EST in Health Channel Talk on AOL. This
chat is hosted by HOST HLTH Misty. Only AOL subscribers can get into
this chat room
There is also another chat on Tuesday evenings at Village Health on the
Web. We meet from 9:00 P.M. EST until 10:00 P.M.EST . You can go to
The Womens Network Chats , look for the chat area, scroll down until you
fine Post Polio Syndrome. You host in that chat will be
cl-ivhealthmisty. Anyone on the Internet can get into this chat room
from any server they may have.
We look forward to seeing you there.
For more info write Azvwis@[EMAIL PROTECTED]
-----
There are several other chats during the week on AOL (not
affiliated with Equal Access Cafe)...click on private room and type in
_postpolio_ (without dashes) Sunday night 9:00 EST, Monday afternoon
4:00 EST, Monday night 9:00 EST, Thursday afternoon 4:00 EST, Friday
afternoon 4:00 EST
I might be forgetting a few of them. I like the ones in the private
room because there are rarely more than 12 there...so the
conversations are easier. I have a hard time following the conversations
when there are over 20 people talking at once. ;-)
Feel free to join us.....there are a lot of neat friends there...you
will feel welcome. Elizabeth
-----
Subject: Polio Chat Room
From: Peggy Bran <peggybran@[EMAIL PROTECTED]
>
Hi Gang, how is everyone this fine day. I've noticed a number of
new faces in our family lately, may I hold out my hand in welcome to you
all. I thought I should let you all know that the Polio Sup****t Chat
Room on AfterNet is alive and well and we sure would like to see you
drop by for a visit. I'm there every night from 7pm Pacific time.
Anyone who would like directions or help on finding the Chat Room
please email me and I'll send you the directions.
Hope to meet you in Polio Chat.
Peggy Bran aka Flakes of Polio Chat
-----
GrassRoots is a text-based virtual reality of real-time
communication on the World Wide Web. GrassRoots developed from the need
to provide universal access and communication to individuals with
disabilities. People are able to communicate much as they do in the
physical world, and this lends itself to an increase in understanding,
sup****t, and the exchange of information.
To visit the WebTree component of GrassRoots:
http://www.enabling.org/grassroots/
Ann K. Parsons, akp@[EMAIL PROTECTED]
-----
Subject: Christian E Group
From: "Tommy" <tlcon@[EMAIL PROTECTED]
>
We consist of 24 (and counting) folks that have PPS and share the
love of the Lord with and for each other.
Here is the URL for anyone wanting to join us and it is an open
member****p.
http://www.egroups.com/group/ppsersandjesus
Warm regards,
Tommy
-----
Subject: [post-polio] great webstie and chat room
From: Cheryl@[EMAIL PROTECTED]
Hi everybody!
I want to share with all of you a website that is loaded with PPS
info:
PPS World Sup****t Group
PPSR - Post Polio Syndrome Resources
Carl Cortez - PPSR Site Owner/Administrator
Site URL - http://ppsr.com
Address: 202 Irma St., Houma, La 70360
Email: Mailto:cjcortez@[EMAIL PROTECTED]
Phone: 504-868-8129
ICQ #: 7848945
Chat Room: StarChat server #A-PPSR-HOME
On Weds at 8pm EST we have chat time, and soon will have more times.
The room is always available, and if I am online I can help out. FYI
my ICQ nick is TYGA and my AOL IM nick is tygabutton. Hope to see some
of you there!
Cheryl
-----
For additional information on Forums see:
http://www.zynet.co.uk/ott/polio/lincoln****re/directory/forums.html
and
http://www.skally.net/ppsc/ppsc-l.htm
---------------------------------------------------------------------
Newsletters:
Subject: Rancho Los Amigos Post-Polio Newsletter October/03
From: lili g <sophia_7777@[EMAIL PROTECTED]
>
As many of you may recall, Richard Daggett, the editor of Rancho Los
Amigos Newsletter, will post to this list to inform us when the info for
the latest newsletter is online.
Mary Atwood as always has done a superb job re****ting the presentation
of Dr. Pearlman in New****t Beach to the Post Polio sup****t group of
Orange County on May 18, 2003.
This newletter is chocked full of fantastic info..caution signs with PPS
meds broken down in catagories, evidence based medicine and PPS and
Research Highlights most interesting to us all. The long awaited study
of nervous systenm inflammation as a cause of PPMA (post-polio muscle
atrophy often referred to as PPS) It was re****ted that there are
cells in the spinal fluid of patients with PPS that are producing
inflammatory chemicals ("cytokines") similar to those seen in MS spinal
fluid and blood. This is the most interesting part to me....these may
be generated by reactions with "Old PolioVirus Debris that is Still
There." Many members on sju in the past have stated they believed the
old polio debris was still lurking in spinal fluid.
In an editorial responce to the Gonzalez reort, Marinos Dalakas, MD, a
premier researcher in post-polio and other neuromuscular diseases,
agrees that these Cytokines may cause progressive toxicity to nerve
cells and some of them can directly cause fatigue and excessive
sleepiness.
Noticeably absent from research ..nothing new from Dr. Bruno relating to
his studies of poliovirus-induced lesions of the reticular activating
system in the genesis of `brain fatigue` and cognitive problems.
Practical Management and most interesting opinions on Oxygen and the
PPSer.
As I previously stated, this October/03 newsletter is full of im****tant
news for us PPSers. Check it out when Richard posts it's online and
ready to view.
GREAT work guys and gals..muchas gracias for all you do to share and
show sup****t for PPS community. I always get much good info from your
newsletters.
With loving friend****p,
Lili
-----
Subject: Florida E.C. Post-Polio Sup****t Group's Nov-Dec 2003 Newsletter
From: Scout <scout@[EMAIL PROTECTED]
>
Florida East Coast Post-Polio Sup****t Group's Nov-Dec 2003 Newsletter
is online:
http://home.iag.net/~bgold/nov_dec2003.htm
CONTENTS:
Meeting Notice
>From Barbara
Post-Polio Update, May 2003, With Susan L. Perlman, M.D., Re****ted by
Mary Clarke Atwood
The Top 10 Secrets to a Stress-Free Personal Life, Author Unknown
The Magic Food – Eat a Banana, Author Unknown
Im****tant Warning – #77
Never Drive in the Rain with Your Cruise Control On
That Golden Age
...Cleo scout@[EMAIL PROTECTED]
Post-Polio Sup****t Group, Ireland,Autumn 2003 Newsletter online
From: Scout <scout@[EMAIL PROTECTED]
>
Post-Polio Sup****t Group, Ireland, Autumn 2003 Newsletter is online:
http://www.ppsg.ie/newsletter23.htm
Contents:
Chairperson’s update
>From the Editor
Valerie, Lady Goulding, Obituary
Fund-Raising News
Bray/Wicklow/Dublin Social Gathering
Jackie’s holiday to Italy - The Outcome
The Irish Wheelchair Association / National Council for the Blind of
Ireland
Peer Counselling Programme
Responding to violence against women with disabilities
Positive Points of Using Wheelchair, Source: Post-Polio Network (NSW)
Inc. Network
City Centre Tub
Toll Bridges and Disabled Drivers
Mobility Scooter Launch (Advertising article)
How to record an oral History of your Experiences and your Thoughts
about Polio, By: Mary Le Clair, Reprinted with kind permission
Post-Polio
Network (NSW) inc. Network News.
Research
Cork Stress Management Week-end
...Cleo scout@[EMAIL PROTECTED]
N.C. Florida Post-Polio Group's Nov-Dec. 2003 Newsletter
From: Scout <scout@[EMAIL PROTECTED]
>
North Central Florida Post-Polio Sup****t Group's Nov-Dec 2003
Newsletter is online:
http://www.postpoliosup****t.com/polio%20post%20news.htm
CONTENTS:
President's Letter - Nov/Dec, 2003
Summary of the October Meeting (DNA Research)
Easing Holiday Pressure!! From "Senior Friends Newsletter"
Research Study: Development of a Test Prior to Statin Use by Carolyn
Raville
Post Polio Lab Experience by Terry R. Mitchell, PhD
Accepting Things You Never Thought You Could By Mary Westbhrook:
from Polio Particles, From Network News NSW Australia Nov. 2001
Polio Above the Neck, An excerpt from an article by Dr. Susan Perlman in
the Newsletter of the Post Polio Sup****t Group of Orange County, meeting
in Illa Park, California.
Laugh Your Way to Better Health, from Laugh your way to better health,"
July 2001, Optum
High Cholesterol: (Hyperlipidemia), Reprinted from the website of
Advanced Cardiac Specialists
Food for Thought: Swallowing Problems by Terry J. Moltzen, MS, CCC-SLP
Swallowing and GERD By Steven Martin,MD
Some Holiday Tips by Grace Young, MA, OTR
How to Take the Stress Out of the Holidays, author unknown
Good Nutrition, the Give You Give Yourself by Joy Semelka
Tricks with "Sticks" by Wilma (Willie) B. Metzger
Letters
Member Notes
...Cleo scout@[EMAIL PROTECTED]
Post-Polio Health International's Summer '03 Newsletter
From: Scout <scout@[EMAIL PROTECTED]
>
Post-Polio Health International's Summer '03 Newsletter is online:
http://www.post-polio.org/ipn/pph19-3.html
CONTENTS:
To Brace or Not to Brace? Improving Function by Holly H. Wise, PT,
PhD, and Jenny Adams, CPO, Coastal Post-Polio Clinic, Charleston, South
Carolina [ARTICLE ONLINE]
>From the Editor [ARTICLE ONLINE]
The West Nile Virus Infection: Like and Unlike the Poliovirus Infection
by K. Ming Chan, MD, FRCPC, and Zoe W.M. Doyle, Division of Physical
Medicine & Rehabilitation, Center for Neuroscience, University of
Alberta, Edmonton, Canada [ARTICLE ONLINE]
New SSA Ruling for Polio Survivors with "Post-Polio Sequelae" by Joan
L. Headley, MS, Executive Director, Post-Polio Health International
[ARTICLE ONLINE]
Update on Research Funded by The Research Fund of Post-Polio Health
International [ARTICLE ONLINE]
Foods that Shutdown Stress by Janice Knight Hartman, Baltimore,
Maryland [ARTICLE ONLINE]
Mozo Shoes: Easy on the Sole by Debbie Hardy, Volunteer Editor,
Whittier, California
Advocate Retires: Stanley K. Yarnell, MD [ARTICLE ONLINE]
Readers Requests
Scooters Purchased
...Cleo scout@[EMAIL PROTECTED]
WNY Polio Survivors Group Sept 2003 Newsletter
From: Scout <scout@[EMAIL PROTECTED]
>
Western New York Polio Survivors Group's Sept 2003 Newsletter is online:
http://www.wnydf.bfn.org/reference/journals/polio/polio03.sep.html
CONTENTS:
Meeting Information
Don’s Book Review: "Broken Yesterdays", By Joseph William Meagher
(2003)
...Cleo scout@[EMAIL PROTECTED]
Southern California June 2003 PPS Manager is online
From: Scout <Scout@[EMAIL PROTECTED]
>
Southern California June 2003 PPS Manager is online:
http://members.aol.com/_ht_a/ppsman/PPSManager.html
CONTENTS:
>From the Editor
Breathing Problems Caused by Post-Polio Syndrome By Lisa S. Krivickas,
MD
Followup Questions Rick asks Dr Oppenheimer
Polio Survivors Foundation: Giving and Receiving since 1978
Safe at Home 'How to' video, Produced by the International
Rehabilitation Center for Polio at Spaulding Rehabilitation Hospital
It Works for Me: Bunny and Sylvia offer advice
Special events : Salk Forum, Riverside Picnic
The latest PPS meeting re****ts for Riverside, San Bernardino and San
Diego Counties
...Cleo scout@[EMAIL PROTECTED]
The Winter 2002 issue of IVUN News is online:
From: Scout <Scout@[EMAIL PROTECTED]
>
The Winter 2002 issue of IVUN News is online:
http://www.post-polio.org/ivun/ivun16-4.html
CONTENTS:
Breathing and Pregnancy
Managing Noninvasive Ventilation: A ****tuguese Experience by João
Carlos Winck, MD, and Miguel Gonçalves, PhT
Body Brace by Julie Levine
My Experience with Noninvasive Ventilation by Steve White
Interfaces, Ventilators, and Supplies
Calendar 2003
...Cleo scout@[EMAIL PROTECTED]
Subject: Post-Polio Network (NSW) October 2002 Newsletter
From: Scout <scout@[EMAIL PROTECTED]
>
Post-Polio Network (NSW) October 2002 Newsletter is online:
http://www.post-polionetwork.org.au/news/ppn55.html
CONTENTS:
President's Corner by Gillian Thomas
Post-Polio Posts
Happy 10th Birthday to the Hunter Area Sup****t Group
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: Newsletter
From: msn/w1066 <w1066@[EMAIL PROTECTED]
>
Friends,
The Polio Connection has posted our latest newsletter Oct 02 on our
website. We suggest you visit our site and look it over.
Note also that we have Dr Julie Silver book " Post Polio Syndrome in
stock. If you desire a copy at our very reasonable price secure our
latest newsletter which you can get by sending us your name, address
with Zipcode and filling out the order page
George
POLIO CONNECTION OF AMERICA
http://www.geocities.com/w1066w
Remember to sup****t PPS research
-----
Subject: Antelope Valley Polio Survivors Sup****t Group Articles
From: Scout <scout@[EMAIL PROTECTED]
>
Antelope Valley Polio Survivors Sup****t Group New Articles Online:
Polio Survivors Return to Battle, Julie Silver, MD, From Rehab
Management, January 2002
http://www.avpoliosurvivors.org/feature_article.htm
[note.. original of this article has a GREAT picture of Dr. Silver:
http://www.rehabpub.com/features/12002/5.asp
and more articles by
Dr. Silver can be found via http://www.skally.net/ppsc/search.html
search for Silver]
Protecting Your Arms Will Keep You Moving, Julie Silver, MD, From
Accent on Living, Spring & Summer, 2000
http://www.avpoliosurvivors.org/article2.htm
How to Prevent Further Disability in Polio Survivors, Julie Silver,
MD,
>From Accent on Living, Summer, 1999
http://www.avpoliosurvivors.org/article3.htm
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: [PPM] Rehabilitation Gazette Winter 2002 is online
From: Scout <Scout@[EMAIL PROTECTED]
>
Gazette International Networking Institute (GINI) Rehabilitation
Gazette Winter 2002 is online:
http://www.post-polio.org/gini/rg42-1.html
CONTENTS:
New Security Requirements and People with Disabilities [ONLINE]
"The Air Carrier Access Act (ACAA) and the Department of
Trans****tation’s implementing rules prohibit discriminatory treatment
of persons with disabilities in air trans****tation. Since September
11, the Federal Aviation Administration (FAA) has issued directives to
strengthen security measures at airline checkpoints and passenger
screening locations. "
Employee Medical Information and Emergency Evacuation Procedures
Tax Items of Interest for People with Disabilities, Lucky L.
Leong, CPA, Saint Louis, Missouri [ONLINE]
Have You Heard?
The GINI Research Fund: Call for Proposals
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: [PPM] Polio Experience Network Spring 2002 P.E.N. & ink
From: Scout <Scout@[EMAIL PROTECTED]
>
Wa****ngton State's Polio Experience Network Spring 2002 P.E.N. & ink
is online:
http://www.polionet.org/pen&ink/PI40-Spr02-02.htm
CONTENTS:
Sharman’s News
"Combining Common Meds May Cause Stroke," By Michael Smith, MD
"Breath Savers: A re****t on two articles about breathing problems of
some polio survivors," Re****ted by Elinor Young
"Polio & Post-Polio Syndrome," By Sheila Tohn, RN
Northwest Futures Unlimited
The P.E.N. & ink Link
"When the Pain is Invisible," By Lisa Copen
Web Finds [second one is a broken link]
"Living With Disability: Being Politically Correct," By Dave Graham
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: [PPM] Winter 2002 Newsletter: Post-Polio Clinic &
Sup****t Group, Cincinnati, Ohio
From: Scout <scout@[EMAIL PROTECTED]
>
Polio Connection, Post-Polio Clinic and Sup****t Group, Cincinnati,
Ohio's Winter 2002 Newsletter is online
http://home.fuse.net/PolioConnection/Newsletters.html
CONTENTS: [note.. all of these are linked to off site web sites and
clicking on the "From the Editor" brings up TWO windows of
advertising
:( ]
>From the Editor
Dr. Albert Sabin honored by new statue at Children's Hospital
Misunderstood Prescription Drugs and Needless Pain
Fine wheeling in Great Britain [not linked]
Acessible Journeys
Flying Wheels
Nautilus Tours
Oxygen is NOT for Hypoventilation in Neuromuscular Disease
E.A. Oppenheimer, MD, FCCP [IVUN News - Spring 2000]
Inclusion Network
Dr. Martin on Post-Polio swallowing and GERD [not linked]
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: [PPM] PPRG Dec. 2001 Newsletter is online
From: Scout <scout@[EMAIL PROTECTED]
>
Post Polio Resource Group of Southeastern Wisconsin's Dec. 2001
Newsletter is online
http://www.geocities.com/HotSprings/4760/SpiritDec2001.htm
CONTENTS:
>From the President's Desk
Dining Out : February Luncheon
Coming Attractions : Meetings and Conference.
Netnews: Steps Taken to Ensure New Security Requirements Preserve
and Respect the Civil Rights of People with Disabilities; Emergency
Evacuation for People with Disabilities; The National Center for
Emergency Planning for People with Disabilities (NCEPPD)
PPRG Conference 2002: We're All In This Together
PPRG's Fall Election Results
Our Members in the Spotlight
The Disabled in a Disaster By Henry Holland
Cincinnati's Stealth Polio Epidemic (Part 2; continued from Sept.
issue) By Richard Bruno, PhD
In Memory of Dr. Saltzstein
A Soldier's Story by Sidney M. Fox
The Marketplace
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: PPS World Sup****t Group Newsletter for December
From: Carl Cortez <cjcortez@[EMAIL PROTECTED]
>
Hello Everyone,
The PPS World Sup****t Group would like to wish you all the best of
the Holidays, below is our link of Decembers Newsletter.
http://ppsr.com/dec2001news.html
Seasons Greetings,
Carl
--
Carl Cortez - President
PPS World Sup****t Group: http://ppsr.com/ppsworld.html
InfoPolio Message Board: http://groups.yahoo.com/group/infopolio
-----
Subject: [PPM] Michigan Polio Network Fall 2001 Newsletter
From: Scout <scout@[EMAIL PROTECTED]
>
The Michigan Polio Network Fall 2001 Newsletter Polio Perspectives is
online:
http://www.mipolio.org/newsltr/fall2001/indexnwsltr.html
CONTENTS:
>From the Chair- by Jerry Hazel
Welcome to the Conference- A Poem by Bonnie Levitan
Newcomers- What to Expect from Post-Polio and the Conference
A Family Affair: The Impact of Post-Polio on Family Relation****ps
-from page 4 PoliOntario January 1999 - Volume 6, Number 2
Post Polio Syndrome- New Problems from an Old Disease Reprinted
from the Mayo Clinic Health Letter, May 2001
...Cleo scout@[EMAIL PROTECTED]
-----
Subject: Dr. Silver's Newsletter
From: Becky <rawrew@[EMAIL PROTECTED]
>
Just wanted to pass on to anyone who is interested can request a
"Newsletter" from the Internation Rehabilitation Center for Polio
(IRCP) by e-mail. Send a request to Anna Reubin's e-mail
agrubin@[EMAIL PROTECTED]
You may go to
http://www.polioclinic.org
or http://www.polioclinic.com/index2.htm
and view Dr. Silver's clinic web-site. You will find this to be
educational.......
I requested 30 copies of their Newsletter to distribute to my group
members at our next polio meeting in November. When I received the
newsletter, they sent a request form for us to fill out with our name
and address, and they will mail out future Newsletters at no charge.
Dr. Silver's is moving her clinic to a new location scheduled around
December 1, 2001.
Hope many of you were able to purchase and read her excellent book.
Take care,
Becky White
-----
Here are some additional newsletter sites:
Leicester****re Post Polio Network
http://www.post-poliouk.org/news.htm
Post-Polio Network NSW Newsletter
http://www.post-polionetwork.org.au/news.html
Western NY Polio Survivors Group Newsletters
http://www.wnydf.bfn.org/public/polio.html
Alabama-Florida-Mississippi Gulf Coast
http://members.aol.com/vmoore4474/index.html
PoliOntario Newsletters
http://www.dimes.on.ca/Programs/postpolio/poliontario.html
Warm Springs [Georgia] FDR Sup****t group
http://www.rooseveltrehab.org/PostPolio%20Newsletters.htm
San Diego Post Polio Notes
http://members.tripod.com/sandiego_polio/pastppn.htm
Polio Connection Of America
http://www.geocities.com/w1066w/newsltr.html
-----
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