All --
I'm a 40 year Crohns patient who's had an ileostomy for 25 years. Six
years ago, I had a total proctocolectomy performed because of
suspicion of colon cancer in a difficult to survey spot. Since I'd
had the ileostomy for such a long time and entertained no real
thoughts of getting it reconnected, the decision to have this surgery
was kind of a no-brainer. There was some discussion with my surgeon
as to whether to leave a rectal stump to make prostate cancer
detection easier. In the end (literally), the then-current risk of
colon cancer as well as the risk of cancer in the rectal stump seemed
great enough that I went with the total proctocolectomy.
As things turned out, colon was negative for cancer. Naturally, my
PSA started spiking two years later. Four biopsies and thirty
some-odd samples later, I finally got a diagnosis of prostate cancer.
My local urologist said the proctocolectomy rules out a number of
treatment options leaving, basically, external beam radiation or
radical prostatectomy. Wondering if anyone else here has been in the
same situation and what you wound up doing. Urologist is leaning
towards surgery over radiation due to age (51) and relatively good
numbers (total PSA 6.9, free PSA 9%, Gleason score 6, PSA doubling
time in the neighborhood of four years). He suspects multiple
previous surgeries for Crohns will make the RP harder rather than
easier and I tend to believe him. Ideas???
--
BSD guy


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