I am a "classic" hemophiliac (factor VIII). I am 33 years old, HIV+ since
the age of 13 because of it, and the father of 2 girls. I used to check
back
here for any articles but never posted anything since no one ever used it.
I'm glad people are starting to notice. My name is Robert, and would like
to
hear from anyone who has the time to talk about hemophilia. I am also a
committee member of the Bleeding Disorders Foundation of Wa****ngton.
http://www.bdfwa.org
Please feel free to post any questions, concerns or
just plain old hellos from people who have the disorder, people who have
been affected by it, know about or even have just HEARD about it. For
anyone
else interested, there is also a Symposium in the small city of Pasco, WA
April 25th and 26th. if anyone can make it, please contact anyone listed
on
the website, or can contact me through this newsgroup post. I hope to hear
from someone soon. Thanks to all for your time :)
|
