> The best site on HHV6 definitely is http://www.hhv-6foundation.org/.
> They have all the latest info on it, as well as the best scientists in
> this field.
Thanks. Did you know HHV6 integrates into the genome? I've found that
and some other stuff on sciencedaily.com. I'll try to post it soon.
> It's scary that they are allowed the title immunologist while
> actually they know so little and act the opposite. Their knowledge is
> based on what they learned in university and that's it. This is just a
> waste of brain. Develop a DVD that lists all symptoms, let the user
> type in the symptoms. Now bring up the tests the user is supposed to
> do. Make those tests. Type in the test results and bring up the most
> probable illness. Show the treatment. Done. You don't need very
> intelligent people for that. You need the most intelligent people
> however to connect the dots on pubmed and develop that DVD and the
> tests and the treatment. To connect symptom to test and treatment
> could nearly be done by anyone.
Well, if I got to go to Congress and pass laws that protected plumbers
from being sued if they ever left a job half-finished, everybody would
take plumbing cl***** and do their own plumbing wherever possible. What
you see in the medical industry is a lack of scientific efficiency.
These guys refused to listen to statistical quality control. They
totally ignored Edwards Deming. Detroit ignored him in the '50s and
'60s but Japan didn't and the Japanese car companies nearly bankrupted
Detroit in the '80s. Today's problems in Detroit stem from the fact
that the car companies have been successful for the last twenty years in
bribing Congress to protect them from rising CAFE (fuel efficiency)
standards. It's rent-seeking - the use of political connections to
protect an industry from the discipline of market forces. I studied
that in graduate school along with microeconomics, which is how I know
exactly what cognitive mistakes doctors make and why they make them.
The medical business is protected from being held responsible for its
decisions. I don't think we're ever going to have enough international
competition in medical care to fully address it - not the way we did
with im****ted cars, anyway.
So if you pay a plumber if he does a bad job and you pay him if he does
a good job, what kind of a job is he more likely to do? It doesn't take
a genius to figure that out. What it does take is someone trained to
see market reality and not somebody trained in any sort of ideology that
fits reality into neat little boxes before you can examine it for
yourself. But economists aren't usually trained to see reality like
this either. I have expertise in literary theory and political science
to thank for that. A liberal arts education and a sense of history are
invaluable in any undertaking. They really give you a deep capacity for
independent thought.
If we gave patients strong property rights and the ability to audit
their health care with outside experts, patients wouldn't have to deal
with the equivalent of sub-prime CDO meltdowns every day. The
government didn't audit the credit quality of the mortgages going into
CDOs and now global credit markets are melting down. This happened
because of a "free market" deregulatory atmosphere in the Republican
party. Republicans have been fighting with the New Deal state since its
inception in the 1930s. Bush has in fact behaved like a Communist, not
a capitalist. It's the job of the government to enforce property
rights. Murder, for instance, is a regulation. If you stopped
enforcing the laws against murder, you'd have more murders. Bush
stopped enforcing the laws against fraud because he believed businessmen
never commit sins and government always does. The result is massive
amounts of fraud. But this was foreseeable. His family has always done
this in office.
Passing laws restricting the ability to sue for medical malpractice
results in more malpractice, plain and simple. You're taking away a
patient's most fundamental property right - his owner****p of himself.
If a doctor can injure somebody and still get paid the same amount, how
much more likely is it you'll see injuries? The data shows exactly
this. In states where it's easier to sue, the quality of medical care
is higher. Lawyering is easy. I can find one lawyer who will sue the
**** out of another lawyer for malpractice. From what I've seen, legal
malpractice is rarer but it does happen and it gets dealt with. How
many doctors will sue another doctor or testify against one? The
doctors I've seen doing the right thing locally almost always get
punished for it even in the most egregious cases of malpractice -
because a scientific standard of care is not what the courts deal with
(if for no other reason than our understand of the law is much less
opaque than our understanding of the human body).
What you're suggesting is a Google-like search system matching symptoms
with likely diagnoses and then evaluating the cost-effectiveness of
various approaches. That's great. I'm all for it. It's got its
problems, but it's infinitely better than the current system in America.
The problem is, seven years ago when I got sick I realized you could
never have that approach as long as various parts of the puzzle have
political protection from market responsibility. People are getting
paid *not* to do things that way and they will lose money if you change.
You can't even collect the data to make such a system work in America.
For instance, is it really in a drug company's interest if a database
keeps a record of people who benefit or don't benefit from their drugs?
Merck has an incentive to sell as many different drugs to as many
different people as possible. It's only due to government regulations
that the market is protected from this - at least it's supposed to be.
If the government were really doing its jobs do you think we'd have so
many ads for prescription drugs on TV? How many people watching "Chuck"
are smart enough to write their own medical prescriptions? How many
people, for that matter, are smart enough to do their own health care
audits? The industry is rife with information asymmetry, as we say in
game theory. There are ways around agent loss problems but the people
giving money to congressional campaigns have been deliberately picking
candidates who are dumb and easily manipulated - moreso than in past
years. It's all about raising money to buy TV ads now. Congress spends
a fraction of the time in committee studying problems that it used to.
People don't fix these issues. *Institutions* do.
The government won't stop Celebrex from getting peddled to toddlers on
TV even though we have known for years than blocking COX-2 makes
autoimmune conditions worse. If the government can't protect
information quality on TV, what do you think they can do when drug reps
talk to doctors in a private office where there's much less of a
spotlight on the relation****p?
Don't get me wrong. You have to keep your eye on government too, but
what you're seeing right now is what happens when special
interests/rent-seekers have protected themselves for a generation from
political responsibility - whether it's credit card companies charging
100% interest a year now or medical providers totally ignoring quality
of service. The result is inefficiency that drags down economic growth.
By the way, if you think I'm smart now, you should have seen me twenty
years ago. I could do this stuff and juggle a dozen other balls at the
same time. Seven years ago, I was so sick I couldn't hold a
conversation and it took me about an hour to read and understand a
paragraph. To say I was in severe pain would be like saying Saddam
Hussein inconvenienced his political opponents. I had to take detailed
notes from everything I read and compare them in lists. It was the only
way I could remember anything. I kept doing that until it stuck. If I
wanted to talk, I would type up sentences in my mind's eye and read them
back. It was awkward, but it worked until I could patch the major holes
in my hull and start the pumps. I was taught to be flexible from an
early age, even under great pain. What can I say? Some lessons you can
only learn in athletics - which we, as a society, have priced out of the
reach of the ordinary person which is why we're now getting fat on
school cafeteria pizzas.
There is a cost to society when you butcher your best and brightest this
way. Getting that through to even John McCain is impossible - and he's
been tortured too. The Republicans have convinced themselves they're
never wrong and businessmen never sin - that's the Pelagian heresy, by
the way. Denial of original sin. These guys are Christians the same
way they're capitalists.
>
>
> > I have started taking Chlorella with a lot of good results. Chlorella
> > is not only an antiviral but also improves IL-10 synthesis and
> > rebalances the immune system. There's even a re****t of it directly
> > suppressing allergic IgE responses to caesin in milk. I'm also
> > weighing
> > spirulina maxima, propolis, aspergillus, cillantro, mushroom extracts
> > and ecklonia cava. Clearly, I won't try all of them.
>
> Maybe I should give Chlorella a try but I'm almost allergic to
> anything. I had total IgE`s of 8000 on a regular basis. Intestinal IgA
> is nearly non existent anymore and pancreatic output is low as well.
> NKs are down, RNase is up as is Elastase. My doctor says the virus
> attacks the intestine and by that causes all the trouble you see in so
> many people with CFS.
> I wonder why you are doing so good mentally. I noticed a huge decline
> in mental abbilities when everything started 5 years ago. There could
> be lots of reasons, one being this:
>
> "Dr Hiro Kuratsune from Japan gave a summary of what is known about
> brain function in ME/CFS. It has been known for over a decade that
> frontal and tem****al lobe blood flow is reduced in ME/CFS, and that
> exercise exacerbates this reduced blood flow for up to 72 hours. The
> new evidence is that elevated elastase and RNase-L levels correlate
> with reduced blood flow. It is known that the MRI is abnormal in the
> majority of people with ME/CFS due to numerous T2 weighted
> hypertintense foci, with evidence of demyelination."
> http://www.meactionuk.org.uk/Facts
from Florida.htm
I have the opposite reaction to exercise. I feel better afterwards.
Then again, I worked out 2-4 hours a day hard in college. That
conditioning might have spared me.
It's possible I never had pure chronic fatigue - or it's possible I
found ways to compensate for various declines in function. I don't
know. I'm scared to get an MRI (again). The last MRI I had was a
disaster. I had to live with several partially herniated discs in my
neck because my neurologist - the ****er - couldn't be bothered to walk
down to radiology and compare the notes from my pinprick exam to my
"average" abnormalities on the film that the radiologist assured him
couldn't be causing the pain. At every place I had pain, I had an
"abnormality" that was in the realm of average (but, hell, people can
walk around with herniated discs and still be asymptomatic, so why look
for them in the first place?). When you've got mercury poisoning and
the ****ngles, those anatomical defects count for a lot. I had to yank
the films and take them to my dentist to get them read properly and even
then I didn't get any real relief until I went to a physical therapist
for a year.
I didn't just 'get' this way. People took my money to make me better
and instead they made me worse. The mercury, for instance, came out of
a cracked filling. Why does the industry put these fillings into people
who already have autoimmune problems and severe bruxism? Because nobody
kicks the **** out of them when they do. So where's the incentive to
stop?
By the way, ever noticed what lidocaine does to HHV replication? The
lidocaine shots to my trigeminal nerve for my TMJ make a lot more sense
now...
Let me give you a few things to try. Keep in mind that carnitines may
increase your problems with viruses.
Acetyl-l-carnitine (which could raise your risk for brain and other
cancers and hair loss - p75 agonist, I'm afraid), could address the
fatigue. Mitocarnitine and the other carnitines wouldn't agonize p75
but also wouldn't affect ASIC3, which is involved in fatigue. A shot of
testosterone would help ASIC3 but it's probably doing it via p75 and
carnitine trans****t anyway... (A PPARalpha agonist would help with
uptake... but again, increasing histone acetylation with butyrate might
help the virus which is probably why you're in this catch-22 in the
first place).
Intestinal helminths. Great for autoantibodies and allergies.
Www.ovamed.com. Not perfect for me, but definitely an improvement.
Low-dose naltrexone.
Molybdenum (needed for metallothionein; would be bad for MT-expressing
tumors).
Vitamin D3
DHEA/testosterone/estrogen/progesterone
Intermittent fasting (autophagy)
B. fragilis/chlorella (for the IL-10)
Basically, I'm trying to fix defects in a chain of pathways that start
with butyrate/carnitine absorption in your gut: OCTN2->butyrate->mu
opioid/cannabinoids/metallothionein/cathelicidin/B-cell proliferation.
I've posted about all the branches before.
Have you ever been tested for heavy metals?
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