Hi again guys & gals!
I was asked to tell members the outcome of my visit to see my
neurologist after I saw him about my pregabalin causing my ankles and
feet to blow up and giving me oedema.
I saw the Epilepsy Nurse again, who spent some time discussing
something called "vagus nerve stimulator" (VNS) as a potential treatment
for my type of epilepsy which was hard to treat. It seemed to be a
kind of small magnetic metal object which sits underneath the skin on
the left hand side of the chest and has two tiny wires leading up
to the neck, sending electric impulses upwards.
It sounded frightening as it needed an operation to put it there, and I
also didn't like the thought of having a big lump stuck to myself like
a yukky benign cancer, so I wasn't too keen on it. He gave me a little
booklet though, and asked me to take it away and think about it as a
last resort.
Afterwards, he also discussed wearing a kind of bike helmet indoors, to
protect my head when I fall, which I found a much better option than
VNS, and offered me the option of two alternative meds to Pregabalin
to try.
These two meds were Rufinamide or Lacosamide, both new anti-epileptic
meds just out.. it's not surprising I'd never heard of either of them
and didn't have a clue which one I would eventually chose - or even
discard yet again! Anybody else here heard or tried them or know what
after effects they have? I was asked to come back in December where I
would have a further discussion with my neurologist about it and my
mind is blank!
Thanks again for listening
Sofie
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Please visit my deviantART page: http://sofen.deviantart.com/
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