Re: Endo Stage IV

I don't have experience with this but I want you to know you were heard
and I wish you well.....

Tricia

court wrote:
> I had stage 4 endo- I am blessed that I was able to adopt a beautiful
> baby boy in 2003 we even got to be in the room at the time of birth- at
> that time I had undergone 5 IVF's (they all failed-never even got
> pregnant) then had 7 very big surgeries (8 hours each) to remove cysts,
> adhesions, ect.  THEN WHEN MY SON WAS 4 MONTHS OLD WE DID OUR 6 AND
> FINAL ROUND OF IVF and it worked (what a miracle) so then when our 2nd
> son was 10 months old and I still had not had a period and was having
> bad pelvic pain and sever pain when i had intercourse that it would be
> best to a total hysterectomy (remove tubes, overies, uterus and my
> cervix) I had that done by my doc that had done my other surgeries-he
> is a gyn oncoligist.  2 months after my hyster- pain came back.  it has
> been 14 months since my hyster and they just found cyst the size of a
> golf ball in my lower left pelvis and I have something else called
> vulvadynia? spelling,......that is what is causing all the pain during
> intercourse.  What do I do now?? I am feeling so frusterated and mad
> and sad and I feel like now what and the oncologist acts like it is par
> for the course my obgyn who diagnosed the vulvadynia is great and
> finally i have an explanantion but the treatment is long and I would
> just prefer them to take out part of my vulva (whih I have read is very
> succesful) the cyst thing everyone wants to wait (have me do lupron and
> see if that shrinks them) no one really wants to go into surgery even
> by scope becasue they say it is such a mess.  What about what I want
> and my quanlity of life??  Can anyone relate- please respond or email
> me at courtneyfroien@[EMAIL PROTECTED]
  I am just curious what others know
> or at this point anything.  Help!
> Bonnie wrote:
> > I recently underwent abdominal surgery for a bladder suspension and
> > removal of
> > right ovary due to cyst. Once in surgery It was found that I had
severe
> > stage IV
> > endo and adhessions. My OB/GYN removed the ovary and fixed my bladder,
> > but said
> > that the endo was on everything he also removed it.
> >
> > I don't fully understand having edno since I had a radical
Hysterectomy
> > 7 years ago
> > and everything was removed but my right ovary.
> >
> > I was having severe abdominal and back pain for the past year in
> > addition to IBS.
> > I have seen so many specialist that I now wonder if the endo has been
> > causing all
> > my problems all a long. Any info about endometriosis would be
> > appreciated.
> >
> > All the info I have found has to due with menstral cycle. I have not
> > had a menstral 
> > in 7 years.