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Support > Dyslexia > Some do not see...
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Some do not seem to understand what i am saying regarding Dyslexia

by dolfrog <dolfrog@[EMAIL PROTECTED] > Jul 9, 2007 at 11:51 AM

In another thread Raymond seems toi have got all upset for no reason
at all.

My Dyslexic history goes like this.
My eldest son was first diagnosed as being dyslexic at the age of 6
years old, and at the time I identified that the issues the
professionals were describing as his dyslexic problems, 3 years later
when i was 42 years old I was diagnosed as being dyslexic, but both of
us did not fit the perscribed models of dyslexia that existed back in
the late 1990s. After 4 years of agonising *****sments my son was
finally diagnosed as having CAPD (Central Auditory Processing
Disorder) as it was then, this was 1998. So CAPD was his underlying
cause of dyslexia, and his nominal dyspraxic issues hindered his
ability to create coping strategies to work around these problems.
In the UK, where we live, no-one had heard of CAPD, although dyslexia
was well know, and some were talking about the mythical Auditory
Dyslexia (which is APD) So basically I had to start from nowhere to
lobby for the UK research Scientists to begin an APD research program
in the UK. part of this campaign was the biulding of an information
web site, to sup****t our campiagn, and because we were lobbying
scientific researchers we had to have a real understanding of the
information we added to the web site, so most of our links were and
still are to existing peer reviewed scientific Research papers free of
subjective opinions and theories. Most of these research papers were
sourced from Universitry based Research investigating the Theories of
Developmental Dyslexia, most of which were investigating and
researching the visual and auditory factors that cause the dyslexic
symptoms.
http://www.infolinks.apduk.org/ukapdprof.htm
http://www.infolinks.apduk.org/international_page.htm
http://www.infolinks.apduk.org/audiovisual_dyselxia.htm
and my  own  recently updated dyslexia web page at
http://capdlinks.homestead.com/Dyslexia.html

In the UK the term dyslexia had been defined back in the 1970s and
1980s and by organisations and agencies who were set up to sup****t
those who haver dyslexia, and these defintions were based on the best
science of the day, and linked into the best amd possible only sup****t
programs of the day. But science has moved on but for many reasons
these agencies and organisations have not moved on in step with ther
scientific research, some for fanciual reasons such as the programs
they promote, some because of their fundraising agendas, and others
because they it is easier to sup****t the status quo. So dyslexia had
become a blanket umbrella term to conceal the underlying issues that
cause dyslexia.

Folowing this international Dyslexia research trail you will find
cultural issues relating to the type of langauge used and/or the type
of visual notation of the auditory language usd in each culture
creates a variety of different issues that dominate each cultures
potential dyslexics. So say in the chinese adn many Asian cultures the
visual issues are the real problem where as in our English based
cultures the Auditory (sometimes also called Phonological) processing
issues are the manin set of issues. The real dilema is thast there are
too many opnions coming from too many backgrounds, and no single body
of research scienbtists co-ordinatinf all of this vast amount of
research and subjective opinion to have a single definition of waht
dyslexia really is.

However many leading researchers from around the world have recognised
the need to have an internationally recognised set of defintions of
these issues, so that they can communicate and share information so
that they can take these issues forward. And the accepted  way forward
is via Peer Reviewed Research, and by this process eventually all the
various theories of dyslexia will either be proved or disproved, and
subjective professional opinion will be eliminated hopefully.
This was easier to apply to Auditory Processing Disorder, as there was
not so many historical interest agendas, the main problem was for the
USA to come to an agreed defintion of APD, which took ASHA % years of
arranged conferences and discussion until thye published theit  (C)APD
Technical Re****t in 2005. A similar Exercise has been started in the
USA regarding Dyslexia, last year, and this project was awarded to
Florida State University.

So as Raymond has already listed there a whole range of issues that
can cause your dyslexic symptoms, and each one requires identifying,
and requires medical *****sment. These underlying causes have more
problems than just dyslexia ( having problems with reading, writng and
spelling) some also share relative poor menory issues, so if you have
an auditory cause of your dyslexic symptoms you may have a poor
auditory memory, simialary for visual issues and visual memory. But
these are medical conditions which notthat can cause dyslexia but not
all who have the symptoms of dyslexia have all of these condtions. So
dyslexia is a useful beacon that high;lights the possible existance of
a whole range of conditions and it is the responsiblity of each
dyslexic to discover which conditions are the underlying cause of
their dyslexia and find out the other problems assocciated with each
condition that they may have.

Each dyslexic has their own package of underlying cause of their
dyslexic symptoms, and these conditions need to be recognised and
defined, and not hidden under a dyslexia umbrella.
Some of these underlying conditions can be comorbid, or co exist, so
you may have more than one underlying cause of your dyslexia, while
others may just have one, no two dyslexics are identically the same.
We al have different strngths to help cope with our dyslexia, some who
have one or more auditory processing issues either are natural Visual
learners or develop visual learning coping strategies (Davis,) and
even those who are Visuial-Spatail Learners, which is a Learning style
are also dyslexic (Silverman)
The other an very im****tan issue is how others view those of us who
have these probles using this man made communication system. The
system was created and developed by those best able to the
communication system, and little regard was made to those who had
problems using this system (dyslexics).  So those who are best able to
use this communication system are not always aware of the problems
that others, who they would consider less fortunate than themselves,
and it is they who dominate the education systems of our various
countries.

So Raymond my think that I am only concerned with APD as a cause of
dyslexia, this is not true, what I am concerned with is is toi have
all dyslexics discover the real underlying causes of their dyslexia,
have them medically *****sed and diagnosed in their own right so that
it is possible toi begin to define how each dyslexic canbest help
themselves work around their problems. Because some of the coping
strategioes used by one underlying cause of dyslexia may not work for
another, or it could even be harmful to another underlying cause of
dyslexia.
Yes I know more about APD than other underlying cause of dyslexia,
that is becxause it my own undelying cause of dyslexia, but other
dyslexics should have a similar understanding of their underlying
cause(s) of dyslexia and sup****t help sup****t other dyslexics who
share their problems.

There is also a need to eliminate the trivial nonsense claims to be
cause of dyslexia, which are not sup****ted by peer reviewed scientific
research.

So from my perspectiver Raymond shouls have been *****sed for APD as
he would appear from waht he says to have APD as one of his underlying
cause of dyslexia inaddition to his visual issues.


best wishes

dolfrog
 




 16 Posts in Topic:
Some do not seem to understand what i am saying regarding Dyslex
dolfrog <dolfrog@[EMAI  2007-07-09 11:51:05 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-09 15:50:00 
Re: Some do not seem to understand what i am saying regarding Dy
dolfrog <dolfrog@[EMAI  2007-07-10 20:02:55 
Re: Some do not seem to understand what i am saying regarding Dy
dolfrog <dolfrog@[EMAI  2007-07-10 20:18:27 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-10 17:22:16 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-10 17:27:57 
Re: Some do not seem to understand what i am saying regarding Dy
dolfrog <dolfrog@[EMAI  2007-07-16 01:44:06 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-18 02:30:17 
Re: Some do not seem to understand what i am saying regarding Dy
ted rosenberg <tedrose  2007-07-18 12:35:18 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-18 03:54:21 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-19 06:48:30 
Re: Some do not seem to understand what i am saying regarding Dy
ted rosenberg <tedrose  2007-07-19 10:41:54 
Re: Some do not seem to understand what i am saying regarding Dy
"astynaz@[EMAIL PROT  2007-07-19 18:56:14 
Re: Some do not seem to understand what i am saying regarding Dy
ted rosenberg <tedrose  2007-07-19 23:38:07 
Re: Some do not seem to understand what i am saying regarding Dy
dolfrog <dolfrog@[EMAI  2007-07-20 17:25:39 
Re: Some do not seem to understand what i am saying regarding Dy
ted rosenberg <tedrose  2007-07-20 23:40:25 

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tan12V112 Sun Nov 23 11:06:06 CST 2008.