On Jun 29, 11:34=A0am, Tony <mrwrec...@[EMAIL PROTECTED]
> wrote:
> On Jun 27, 1:28=A0pm, "neetac" <nee...@[EMAIL PROTECTED]
> wrote:
>
>
>
>
>
> > Hi All,
>
> > Haven't been here for a while but looks like I'm in for a major change
=
of
> > life.
>
> > I've had CD for about 10 years now and would be due to have my 20th
> > anniverary with my employer this september, but I don't think I'll
make=
it.
> > There's been talk a number of times about retiring me out on
ill-health
> > grounds, more frequently in the last couple of years, and now it looks
=
like
> > it's really going to happen this time - I got the letter about
instigat=
ing
> > the procedure this week. =A0I had a major flare-up about 18 months ago
=
and
> > haven't been quite right ever since. =A0At the time of the flare, they
> > quadrupled my mesalazine (the medication I'd been on since being
diagno=
sed
> > after they realized I couldn't handle the sulfer based ones), and
added
> > prednisone, remicade infusions and immuran. =A0Then for the following
1=
2
> > months they fiddled about with the dosages, dropping some off and
added=
iron
> > infusions until finally as of december last year I was down to only
the
> > immuran (250mg per day) which I've been on since then. =A0I also take
f=
olate,
> > zinc and have B12 injections (all of which I've had for years due to
> > malabsorbtion issues).
>
> > I've always had extremely urgent diarrhea but it's always settled into
> > reasonable predictable "clusters" during the day that with flexible
wor=
king
> > hours I could work around. =A0However since this last flare that
hasn't
> > happened. =A0It may only be a half dozen times a day on a good day,
but
> > they're all over the place and considering I still suffer at least 1
> > "accident" a week in my tiny little flat where I'm close to a loo that
=
I
> > don't have to take my chances competing with anyone else for, I've
been
> > missing a lot of work. =A0Also I've had a couple of bad bouts of
illnes=
s: a
> > gastro infection and later on a respitory infection where the
illnesses=
and
> > treating antibiotics really played havoc with my =A0bowel habits.
=A0Th=
en for a
> > month my heart went berko on me resulting in blood tests, ECGs and a
ha=
lter
> > monitor. =A0All of which could find no problem luckily, the consensus
s=
eemed
> > to be it was triggered by the infection and eventually it settled down
=
on
> > it's own. =A0But boy did it throw my already wonkey body rhythm out of
=
whack
> > even more. =A0I don't fall asleep before 4am no matter what I do, and
b=
elieve
> > me I've tried everything. =A0So I'm exausted only getting a couple of
h=
ours
> > sleep a night. =A0Then my body seems to revolt and I'll have a day
wher=
e sleep
> > for 12 hours straight even through alarms, neighbourhood noise etc.
>
> > The specialist told me that if my body has settled into a rhythm in
the=
past
> > it probably will again, I just need to get used the new medication
(and=
a
> > steady dosage of it) and require a period of stress free good health
fo=
r
> > everything to settle down. =A0Obviously work doesn't want to wait
thoug=
h, they
> > sent me off to the Government Medical Officer to get his opinion,
which=
came
> > back last week and wasn't very positive. =A0So here I am looking down
t=
he
> > barrel of retirement on a superannuation illness pension at 39. =A0All
=
of
> > which is incredibly stressful and consequently, I've had a dreadful
wee=
k
> > this week. =A0I'm beginning to think, bugger it, just let it happen -
s=
urely
> > the once it's done, the stress of continually fighting keep my job
(whi=
ch
> > I'm really getting sick of) being gone maybe something will improve.
>
> > So I was wondering how may of you out there have given up working
(eith=
er
> > forced or voluntarily) and does it make any difference to your health?
>
> > Thanks for "listening" to a long post.
> > Any advice or comments would be appreciated.
>
> > Neeta.
>
> I think I have UC (docs not sure if UC or Crohns) & have been off sick
> since Jan this year. I am due to have ileostomy sometime soon as drugs
> can no longer control things. I have an appt to see docs on Monday
> (tomorrow) to discuss which operation & when. Work are sending Occ
> Health round on Wed, all they will say is that it is to 'explore
> future options'! So I think they are going to give me the push. Or
> maybe give me the chance to jump?
> I will let you know what they say. Not too sure yet of how I stand if
> they try to push me, as soon as I can get the energy, I will find out!
> The extra stress of not knowing is not helping matters.
> All that seems to settle me down is high doses of pred. I have tried
> all of the other drugs & am currently on Pentasa & Cellcept. Pentasa
> is new to me & Cellcept is very new to me. Neither are working & I am
> having side effects from the cellcept, a nasty drug, worse than pred.
> I think I am going to jump. The not knowing is adding stress when I do
> not need it. It is possible to get another job once I'm well again.
> Jobs can be replaced or done without, you only get one life.
> I am in England btw.
> Thanks & good luck
> Tony- Hide quoted text -
>
> - Show quoted text -
Right then.
Occ Health were very good, no sign of pu****ng or jumping. Quite the
reverse.
Surgeon also set date for end of August for stage 1.
Tony
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