I think that it's irresponsible to dole out this kind of diagnostic
speculation and drug advice from someone who is (a) not a physician and
(b)
has therefore never examined you or seen your medical records. A trained
gastroenterologist who had never examined you would never do such a
thing--still less so should a self-appointed "expert" amateur on a
newsgroup.
If you have any doubts about your treatment, the best course of action is
to
seek a second opinion from a specialist at a leading teaching hospital in
your area.
"Vanny" <Vannyss2003@[EMAIL PROTECTED]
> wrote in message
news:g3t0o5$3hf$1@[EMAIL PROTECTED]
> Well, good but mixed news. The CF might well be associated with the
> medication, but as you still have discomfort, this indicates that the
> Crohn's is still smouldering and active Crohn's is a cause of CF. I was
> fighting through my days years prior to my diagnosis.
>
> While you still have symptoms wouldn't it be worth considering longterm
> Azathioprine (aka Imuran) or 6-Mercaptopurine - generally 4 years?
>
> Smouldering Crohn's can do a lot of damage - I am living proof of that
and
> the 5-ASAs have limited efficacy in Crohn's disease, depending on the
> patient. They seem to be helping you, but I would argue that you are
still
> not receiving optimal therapy given that you still have moderate
symptoms.
> Severe fatigue counts as moderate Crohn's in my books and blood and pain
> are not prerequisites in CD.
>
> Do you have raised inflammatory parameters - CRP (C-reactive protein),
ESR
> (erythrocyte sedimentation rate), urinary-TNF alpha, etc?
>
> Vanny
>
>
>
> "Rufus" <not@[EMAIL PROTECTED]
> schrieb im Newsbeitrag
> news:31j8k.170458$TT4.72907@[EMAIL PROTECTED]
>> Went to see my gastro at UCLA yesterday for a three month follow up on
my
>> last scope/biopsy procedure. I'm doing well enough that he doesn't
want
>> to see me for checkup for another year, unless I have any difficulty -
>> then I'm to call him straight away. In the meantime I'm to continue
my
>> nine pill/day Colazal / once per day Protonix regimen. It appears to be
>> working for me. I am doing pretty good, though I do still have some
left
>> side discomfort so I'm not in what I'd consider "remission"...but I'm
>> doing very well. Things are under control for now.
>>
>> My biggest complaint is still chronic fatigue, and I have a theory on
>> that that my doc says is plausible - I experienced severe insomnia
while
>> on Asacol, and Asacol and Colazal are the same basic drug (mesalamine)
>> but differing in delivery method...so I feel that the Colazal is doing
>> the same thing, just not as severely - i.e.; while I'm sleeping better,
>> the mesalamine is still interfering with my deep sleep pattern, so I'm
>> feeling that - particularly in the mornings.
>>
>> Doc said that that is plausible, and offered some sleep aids, but I
still
>> have some from when I was on Asacol and I might try Ambien CR again
just
>> to see if it helps any. I figure just occasional use should be ok -
>> maybe once or twice per week. If it makes a difference I'll get my GP
to
>> write me for more.
>>
>> Anyway, bottom line is to keep doing what I'm doing because it seems to
>> be working for me.
>>
>> --
>> - Rufus
>
>
|
