Well, good but mixed news. The CF might well be associated with the
medication, but as you still have discomfort, this indicates that the
Crohn's is still smouldering and active Crohn's is a cause of CF. I was
fighting through my days years prior to my diagnosis.
While you still have symptoms wouldn't it be worth considering longterm
Azathioprine (aka Imuran) or 6-Mercaptopurine - generally 4 years?
Smouldering Crohn's can do a lot of damage - I am living proof of that and
the 5-ASAs have limited efficacy in Crohn's disease, depending on the
patient. They seem to be helping you, but I would argue that you are still
not receiving optimal therapy given that you still have moderate symptoms.
Severe fatigue counts as moderate Crohn's in my books and blood and pain
are
not prerequisites in CD.
Do you have raised inflammatory parameters - CRP (C-reactive protein), ESR
(erythrocyte sedimentation rate), urinary-TNF alpha, etc?
Vanny
"Rufus" <not@[EMAIL PROTECTED]
> schrieb im Newsbeitrag
news:31j8k.170458$TT4.72907@[EMAIL PROTECTED]
> Went to see my gastro at UCLA yesterday for a three month follow up on
my
> last scope/biopsy procedure. I'm doing well enough that he doesn't want
> to see me for checkup for another year, unless I have any difficulty -
> then I'm to call him straight away. In the meantime I'm to continue my
> nine pill/day Colazal / once per day Protonix regimen. It appears to be
> working for me. I am doing pretty good, though I do still have some
left
> side discomfort so I'm not in what I'd consider "remission"...but I'm
> doing very well. Things are under control for now.
>
> My biggest complaint is still chronic fatigue, and I have a theory on
that
> that my doc says is plausible - I experienced severe insomnia while on
> Asacol, and Asacol and Colazal are the same basic drug (mesalamine) but
> differing in delivery method...so I feel that the Colazal is doing the
> same thing, just not as severely - i.e.; while I'm sleeping better, the
> mesalamine is still interfering with my deep sleep pattern, so I'm
feeling
> that - particularly in the mornings.
>
> Doc said that that is plausible, and offered some sleep aids, but I
still
> have some from when I was on Asacol and I might try Ambien CR again just
> to see if it helps any. I figure just occasional use should be ok -
maybe
> once or twice per week. If it makes a difference I'll get my GP to
write
> me for more.
>
> Anyway, bottom line is to keep doing what I'm doing because it seems to
be
> working for me.
>
> --
> - Rufus
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