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Support > Crohns - Colitis > I did it and I ...
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I did it and I survived it

by "Vanny" <Vannyss2003@[EMAIL PROTECTED] > May 22, 2008 at 02:55 PM

I went for (o)esophagogastroduodenoscopy (EGD) and ileoscopy yesterday.
Both 
without anaesthesia except for a bit of Benzocaine spray to locally numb
the 
mouth, throat and upper oesophagus (you have to swallow after application
of 
the spray). The great thing was that they did both ends in a matter of 
minutes and I could follow the ileoscopy on the screen because I was on my

back. The not so great thing was the m***** of air that were pumped into
my 
small intestine, which caused me great pain and I ended up panting as
though 
I was about to give birth, which probably surprised the doctor. I think
that 
the pain was more than I expected because it expanded the possibly 
Crohn's'd, but definitely painful and stenosed resection site from 2005, 
which was beyond the 35-40 cm of ileum that he managed to look at and 
biopsy.  The EGD was also not that amusing and one nurse was positioned 
behind me, holding me and she pinioned my right arm to my body as I lay on

my LHS (my right arm was wedged underneath my body) probably to prevent me

from trying to grab the scope, pull it out of my throat and run out of the

room. Another nurse was watching me as the doctor was watching the screen.
I 
couldn't follow the EGD because I had my back to the screen - the doctor
was 
feeding the scope in and obviously had to be able to see the screen
himself.

It was great being able to walk around immediately afterwards with a 
relatively clear head and not doing any damage to myself because of my
usual 
reaction to full anaesthetics. I just had to wait 20 minutes prior to 
eating, otherwise food would have ended up stuck in my oesophagus.

Both ends were clear except that my stoma was stenosed (I have been
telling 
the docs that since 2005) and there were signs of inflammation and what 
looked to me like ulceration, but the gastroenterologist said that it was 
just part of the localised inflammation. It is probably due to the short 
bowel syndrome and the never ending diarrhoea irritating the tissue as 
partially digested bits ac***ulate there. The main re****t including the 
biopsy results will arrive in 10-days or so and then I want to go to see
my 
surgeon to prepare for emergency surgery due to the subileus at the end of

April. 
http://www.google.de/search?as_q=subileus&hl=de&num=10&btnG=Google-Suche&as_epq=&as_oq=&as_eq=&lr=lang_en&cr=&as_ft=i&as_filetype=&as_qdr=all&as_occt=any&as_dt=i&as_sitesearch=&as_rights=&safe=images

The part of my intestine that was giving me pain before the procedure is 
giving me more pain, but it is receeding somewhat 24 hours after the event

and, despite it, I did manage to sleep well last night. With any luck I 
won't have to do that for another 3 years. It helped that I spoke to a 
friend with UC the night before last and she told me that she has been 
having routine colonoscopies since she was 19 and has never had a full 
anaesthetic. So there was no backing down! (Or, perhaps, forwarding down 
would be more appropriate in our case).

I did not take any of my medication prior to the morning procedure and I
was 
told in no uncertain terms not to take the Tincture of Opium. I could have

taken the other meds, but chose not to. It would probably have been a
waste 
because the Moviprep taken on the morning of and 3 hours prior to the 
procedure would just have washed everything through.

By the way, I would not advise anyone who has active disease to go without

full anaesthetic unless you are particularly masochistic. I only did it 
because I was fairly certain that I did not have active disease for the 
extent of the gut that he was going to invade and I wanted to avoid the 
side-effects of the full anaesthetic that makes me feel even sicker 
afterwards. I am sure that I would not have been able to do the EGD
without 
the Benzocaine spray. I did also have the option of an injection at any 
time. If I had not had a full anaesthetic in 1992 when they diagnosed me 
with Crohn's colitis I would most certainly have screamed the house down.

Vanny
 




 6 Posts in Topic:
I did it and I survived it
"Vanny" <Van  2008-05-22 14:55:23 
Re: I did it and I survived it
Rufus <not@[EMAIL PROT  2008-05-22 18:56:08 
Re: I did it and I survived it
Simon Scott <scotty_no  2008-05-25 12:33:23 
Re: I did it and I survived it
Rufus <not@[EMAIL PROT  2008-05-25 03:43:46 
Re: I did it and I survived it
"Vanny" <Van  2008-05-25 14:49:20 
Re: I did it and I survived it
Rufus <not@[EMAIL PROT  2008-05-26 18:44:53 

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tan12V112 Thu Aug 28 12:53:20 CDT 2008.