Any dead links will be corrected as time allows. Part 3 of 4 RESEARCH FUNDING None of these organizations are actually research organizations though they do all fund research. National Fibromyalgia Partner****p http://www.fmpartner****p.org/FMPartner****p.htm "Our Mission is to make medically-accurate, quality resource information on fibromyalgia (FM) available to our member****p, healthcare professionals, and the community-at-large." American Fibromyalgia Syndrome Association http://www.afsafund.org/research.htm "AFSA is a non-profit organization dedicated to research, education and patient advocacy for fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS)." Immune Deficiency Foundation http://www.primaryimmune.org/about/about.htm "The Immune Deficiency Foundation (IDF) is the national non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education. IDF is governed by a Board of Trustees, has an active Medical Advisory Committee comprised of prominent clinical immunologists, a nationwide volunteer sup****t network, and a dedicated professional staff." FMS Awareness Day: http://fmaware.org/may12/may12_2003overview.htm FMS Awareness Pin http://fibromyalgia-syndrome.com/AwarePin.htm FMS = Why me? http://pages.ivillage.com/cl-bhbeverly/www.html My wife has Fibromyalgia http://users.ilnk.com/health/fibromyalgia/fibromyalgia.htm Newsletter http://members.aol.com/fibrocloud/main.htm Articles http://www.suite101.com/welcome.cfm/fibromyalgia Writings http://www.pendulum.org/related/related_fms.html http://www.tidalweb.com/fms/courageous.shtml DISABILITY LINKS U.S. http://www.ssa.gov/ http://www.ssa.gov/news.htm#kits U.K. http://www.dwp.gov.uk/lifeevent/benefits/disability_liv_allowance2.asp http://www.disabilityuk.com/masterpages/dla1a.htm. http://www.bhas.org.uk/dla.htm. http://www.bhas.org.uk/medical_visit.htm. http://www.rnib.org.uk/xpedio/groups/public/do***ents/publicwebsite/publi c_checklist.hcsp FMS EXERCISE VIDEO TAPES Dr. Sharon Clark/Dr. Robert Bennett I have this tape thus can recommend it: http://www.myalgia.com/Videos/Aerobics_tape.htm http://www.amazon.com/exec/obidos/tg/cm/member-glance/-/A1AFSBZ63FL8YA/re f=cm_cr_auth/102-0196001-1994516 If interested use this google link: http://www.google.com/search?hl=en&ie=UTF-8&q=Fibromyalgia+Exercise +Video+Tapes SLEEP/INSOMNIA http://web.tampabay.rr.com/lymecfs/drugs.htm http://www.talkaboutsleep.com/ http://www.muhealth.org/~fibro/fm-md.html http://www.wfprofessional.com/fms.htm OTC antihistamines, e.g. diphenhydramine (benadryl), doxylamine can help but are not without possibility of some risks so check with your doctor: http://www.emedicine.com/emerg/topic38.htm http://www.jclinpharm.org/cgi/content/abstract/29/3/257 CHRONIC MYOFASCIAL PAIN (formerly Myofascial Pain Syndrome) http://www.sover.net/~devstar/cmpsdef.htm http://www.drshankland.com/myofascial.html http://www.tidalweb.com/fms/ http://members.aol.com/fibroworld/ Worksheet I use: http://www2.rpa.net/~lrandall/fmslog.html http://www.health-books-web.com/Fibromyalgia_and_Chronic_Myofascial_Pain_ A_Survival_Manual_2nd_Edition_1572242388.html VISION SYMPTOMS Common Vision-Related FMS&MPS Complex Symptoms http://fibromyalgia.ncf.ca/dseye.htm **new 2/15/05 from Joan Visual Dysfunction in Fibromyalgia/Chronic Fatigue Syndrome By Lesley J. Vedelago, O.D. http://www.cfids.org/archives/2001rr/2001-rr3-article02.asp **New 2/15/05 from Joan IRRITABLE BOWEL SYNDROME (IBS) http://familydoctor.org/healthfacts/112/ http://www.ibsassociation.org/ http://www.panix.com/~ibs/ http://www.aboutibs.org/ http://www.digestioninfo.com/ http://www.healingwell.com/ibs/ http://www.niddk.nih.gov/health/digest/pubs/irrbowel/irrbowel.htm http://digestive.niddk.nih.gov/ddiseases/pubs/ibs/ http://www.gastro.org/public/ibs.html http://www.ibsgroup.org/ http://www.fascrs.org/brochures/irritable-bowel.html http://www.diagnose-me.com/cond/C21225.html All that works fairly well for me is OTC ImodiumAD when needed. AMF Fmily Jobie advised that Walmart's Equate brand is exactly the same but less expensive. COSTOCHONDRITIS dx criteria differ from Tietze's Syndrome http://www.whonamedit.com/synd.cfm/2640.html "Tietze's syndrome and costochondritis are not identical, as the Tietze syndrome is associated with swelling, whereas costochondritis is not." Most sites and many doctors do not make this distinction... http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed& dopt«stract&list_uids•070630 http://www.healthsquare.com/mc/fgmc2182.htm http://www.nlm.nih.gov/medlineplus/ency/article/000164.htm http://www.healthlinkusa.com/content/577.html RESTLESS LEG SYNDROME http://www.1uphealth.com/health/restless_leg_syndrome_info.html http://archive.abcnews.go.com/sections/newsuse/wnt0908_restless/index.htm l http://www.findarticles.com/cf_dls/g2603/0006/2603000624/p1/article.jhtml [cont'd in Part 4 of 4]
